Another Quick One
Hi everyone,
Delinquent am I, I know. Carriella will be entering the school system in a little bit more than a month. She's still not talking, although she sure does scream a lot. I have noticed that she has been crying more and more after songs end. She has been doing that on and off since she was little but it has gotten a lot worse. Is this anxiety? I just don't know.
It's getting harder and harder for me to talk about her issues. I know we've been so fortunate with her health, but I'm just not satisfied. It's hard to see my friends with typical little girls her age. I hate to say it. I should just erase it, but I won't because I can not deny these feelings. What did she do to deserve this??? This is why I haven't been blogging. And I will post this. Because it's real. And I think I'm in denial 99% of the time.
This sucks.
Delinquent am I, I know. Carriella will be entering the school system in a little bit more than a month. She's still not talking, although she sure does scream a lot. I have noticed that she has been crying more and more after songs end. She has been doing that on and off since she was little but it has gotten a lot worse. Is this anxiety? I just don't know.
It's getting harder and harder for me to talk about her issues. I know we've been so fortunate with her health, but I'm just not satisfied. It's hard to see my friends with typical little girls her age. I hate to say it. I should just erase it, but I won't because I can not deny these feelings. What did she do to deserve this??? This is why I haven't been blogging. And I will post this. Because it's real. And I think I'm in denial 99% of the time.
This sucks.
posted by Edna at
10:43 PM
11 Comments:
It is all relevant. I have a little girl in my class that has Rhett's syndrome. It definitely lets me realize how much, much worse this could all be. That said I still have many days where I wish he could be like everyone else and I wish things could be easier for us. Thinking of you.
You know what...we all think the smae way at one time or another. I think you get used to it for awhile and then there are times when you just feel sucker punched and you know what...it does suck!
Hang in there...blogging is therapy...even if you write it and never publish it:)
Noel
Julie and Noel are right, we all feel what you are feeling at some point. I have a hard time even holding any relationship with people who have typical children around Ava Jewel's age. For example, I didn't post this because I know this woman that I will now share a story about reads my blog. So today, this young mother asked me how Ava's cardiac appointment went this past Monday, so I told her. I am still in shock what came out of her mouth... she said to me, oh I wouldn't even think about the lung transplant (I told her how the doctor said when they fail it is a painful death) if she's going die just let her have the heart attack. Then she went on to tell me how horrible her week was since she was in the car most of the week looking at cars and her daughter who is 2, (the little girl who can say her street address, phone number, can play board games) was in the car all week with her. Oh yes and now that's a horrible week. I really don't have the energy to have friends anymore because when they complain it is over the simplest things and I guess I am jealous. I am still trying to figure out why when I went to take Ava Jewel out of her car seat tonight she had a melt down for over 10 minutes, crying - kicking - hitting - etc and then calm like nothing happened? So hang in there, I agree with Noel, it is therapy... in fact you can send me a bill for this comment:)
Hand in there friend.... We ALL have these days...truly we do. Keith did not really talk until he was 4 and he still only talks in some phrases, some one words, very few sentences, if at all. He is very cognitively delayed. It's ok to be sad. I am here if you ever need to talk to email.
Like Anna said, it's hard to relate to others these days...hard to have friends with typical children because we end up resenting them and their "problems". Try using us Blogger mommies as support. It really does help. It has truly saved my sanity.
Keep the faith. I am here to talk if you need to.....
Penny, mom to Keith
Big ol hugs. Write and let it all out if it feels good.
We're in the same boat ~ Brady starts school next week and he doesn't talk, walk, sign, zip. Good thing he's so cute.
I guess I joke around because what else is there - I can't spend all my days sad and wishing he was something he's not. He's already gone further than I what I dreamed he could do, so hopefully he will continue to progress. Other people don't get it though - if I hear a friend or relative tell me one more time how great their kid eats,e tc I will scream.
Hang in there - you are amongst friends out here in blogging world! :) Hugs~~
It is very true we do go though a lot of this together and actually "get it" you are not judged here, you feel how you feel and we are in your shoes at any given time. since we are venting, I always hate when people ask you how your child is and if you are honest and tell them an issue, all of a sudden they are a authority on it and give you all kinds of advice and you think "wow you are a genius Wiley Coyote, I hadn't even thought about that" ugh!
Hang in there,
Tes
Avery cries after songs because she wants it to keep going, she will sign and ask for more. Sometimes I hesitate to let her listen to music when she is tired because she can get REALLY sobby after it ends. Just blog you annoyances out of your system! We get it, sista! School will be great though. AVery is a late bloomer in terms of WS and she is just gaining in leaps and bounds now at 3.5 yrs old, everyday it is something new Hang in there.
xoxo
Amy
Hey! I don't know how I missed your post, but I somehow did. Your feelings are so understandable. Payton is almost five and I still get down a lot. it just sucks watching your child struggle. If it helps any, Payton really started talking close to age four. Before that it was maybe a couple of words here and there - but still a lot of frustration (ahhh, the screaming - it's lessened so much, but when it happens it's still so dramatic). Hang in there. I'm thinking of you and hoping school helps her as much as it helped Payton. I will check back for updates to see how school is going for her.
Like the others said - blog and vent away. We are all here if you EVER need us.
Hang in there. Hugs,
Tara
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